Our research database: how to request data

Are you interested in using our data? HollandPTC has a research database consisting of prospectively-collected patient information. This database consists of health, treatment and follow-up information of all consenting patients treated at HollandPTC.

Important note: only researchers from HollandPTC and our consortium partners, Erasmus MC, LUMC and TU Delft can apply for the data.

Available data

There is a wide variety in data available. To make your request as specific as possible, we will schedule a meeting to discuss the data you need in more detail.

Examples of available data in the following categories:

• Demographic information
  sex, age, education level
• Clinical performance of the patient
  length, weight, general and oncological history, use of medication, smoking status
• Tumor information
  tumor site, tumor location, tumor stage
• Diagnostic procedures (imaging)
  CT, MR and PET/CT imaging
• General treatment information
  previous surgery, systemic treatment and/or radiotherapy of the tumor
• Proton therapy-specific treatment information
  treatment plans, total and fraction dose, number of plan adaptations
• Symptoms (including toxicity)
  symptoms before treatment, CTCAE before, during and after treatment
• Tumor follow-up
  local recurrence, metastases, new malignancy, date of death
• Information on the activities performed in HollandPTC
  number of CT, MR, PET/CT scans, number of consultations, number of fractions, first day of radiotherapy

If you would like to use any of this clinical data, please contact us [link].